I've been reflecting a lot on the past year. There has been some good, bad and some ugly, but I always come out fine. There have been some real high points and some real low points. These points are always used as a lesson for me. They show me where I have grown and where I can grow some more.
January started off fabulous. I started my second and last semester in a special education program through my school district. I was able to take some awesome college classes while I still had a buddy to help me navigate campus. I was able to navigate campus at my own level, but when I needed help, they were there for me. I had a mentor for each class and I had some mentors that are some good friends now.
During that last semester in the program, I had the opportunity to start taking college classes for credit. I would head out on to campus and go to my class with a mentor. Half way through the semester I decided I was ready to be on my own. My mentor was taken a way and I was a rock start. I came out of my first college class with a B.
February came in like a lion and went out like a lamb. I know your probably thinking about march and how spring comes in. Really, though it was a rough start that had a smooth ending. The first of February marked the one year anniversary since my Papa passed away. He passed away the day before Ground Hog Day. It was a time to reflect on what had happen and its very nice that my grandmother doesn't mind when I bring my Papa up sometimes. It helps me cope to talk to her about him.
Two weeks later, I celebrated my last year being a teen. I had my 19th birthday. Yes, if you did the math correctly, my Papa died two weeks before I became a legal adult. I celebrated my 19th by hanging out with some good family friends. We went to a really neat pottery painting place and I made sock monkey. Then we decided to go out to lunch at my favorite wing place. I was served a huge cookie dough cupcake that a friend got me.
After lunch we moved and grooved our way over to our big entertainment arena for some dancing. We watched people dance to raise money for kids with cancer. It was pretty sweet to watch and even better to do with friends on your birthday.
March pretty much started off with spring break. We decided not to go anywhere this year for spring break because its hard for my little brother to take off from school. You'd think that our schools would have a spring break for the kiddos, but they don't. Ever other county school district does though. Heck, we live in a big college town.
The special education program I was involved with this past spring had the opportunity to do some cheerleading. We went about an hour and a half away to a competition. It was fun to be part of the team, but to be perfectly honest, I not huge into cheerleading.
Transitioning from march into april I was privileged to be invited to host a award ceremony and banquet. I was invited by our local Youth Service Bureau as one of the youth to help organize and put on the event. Of course we had help from our case managers. Our youth program proudly hosts our local branch of Big Brothers Big Sisters and when I was in high school I had a big sister.
April came into full swing and it was time for me to graduate from high school. Now let me tell you I am one busy lady. I think I barely made it to my own graduation. I arrived at my classroom where my teachers attempted to put make up on me to no avail because I have been traumatized with eye drops my whole life. When it was finally time for the graduation, i went downstairs to the community room where the graduation and dinner was held. When it was my turn to give me speech, I had tears in my eyes. I had grown so much.
In May I had another formal event. I was cordially invited to a private screening a documentary I was able to take part in. If you haven't seen Camp Victory which is produced by WVIA, its a must see. There are campers from all over the nation that attend this camp. Its one place where I feel at peace and I feel comfortable. There is no one to judge me and I can make friends easily. I'm really sad when I leave and I really hope that one summer I can spend the whole summer working there.
June started off with some volunteering at my favorite camp. I started my volunteering at Camp Chameleon which is a camp held on the Camp Victory grounds. My camp as I like to call it where I can reunite with old "family". It really becomes quite the family reunion after you attend the camp for 10 years and county.
I came home from camp for a week long break and I was back up to Camp Victory again to volunteer at a camp for kids with brain injuries. I got to help with the junior girls. They decided to dress up as princesses for our Emmy nigh. It really is truly magical being able to give back to a place that helped you so much as you grew up. We had a hollywood theme.
As soon as camp was over, I had to hop in my SPEEDY car and drive two hours home so that I could get a shower and put a dress on. I hopped right back in my speedy car and drove another two hours to the opposite end of the state to participate in a charity ball for the autism center I attended. Yes, for about a year I drove a whole hour to receive autism services. I was actually the one in the city and I had to drive out into the middle of no where to get services. I'm not sure how that worked out but it did. Thanks, once again to Melissa and Linda for inviting me. It really was an honor. If you did the math there, that was 4 hours in the car for 6 hours in the car for me in one day and 8 hours for my father driving, but we made it happen. I have awesome parents.
July started out pretty smoothly at least I can't remember anything too remarkable, but summer sure did go fast. During the last week of July, I had the opportunity to participate in a transition conference which was awesome. It was truly set just for youth advocacy and empowerment. It was held by youth for youth. It was an empowering experience that I hope to have again this coming year.
On the last day of the conference, I remember going to an activity fair. I met a women who had complex partial seizures. I was talking to her about the episodes I would have periodically. She said she would get de ja vu and I thought I did too. I was talking about this in front of one of the youth board members and now that I look back I feel so terribly that mentioned that and then had one of those very episodes that evening. It was also the first day of the summer games and during the first day of the 08 games, I took my last seizure pill. I just hope that everyone knows I am not faking stuff. I landed in the emergency room that night and we still had company that weekend.
August was when I finally met with my neurologist for the first time. I was told that I had epilepsy. It wasn't a huge shock, but it was hard to handle after being told for so many years that I had outgrown my seizures. I was put on epilepsy medicine, got a medical alert bracelet and started my first semester of college with the office of disability services helping with two classes.
September was a month of adjusting to college, life and interacting with more peers. I got a second job working for a local ice cream [lace that hires purely high school and college students. Hint!!! Its been awesome working there and I love my bosses.
October was another crazy busy month and a month of Hell trying to deal with the seizure medication I was put on. October is pretty much a blurry mess and there isn't a lot to remember other than I had a lot of anxiety.
November pretty much came and went. I had a very simple holiday with my immediate family. We had a nice turkey dinner and talked about what we were thankful for. I reflected on how much I had grown and how thankful I was that I had grown that much. A couple years ago, the plan for my life was to be a Walmart greeter living in a group home. I come so far now that I am going to college working towards a degree.
December came with lots of high's. I was finally put on a medication to treat my seizures that works for me. I was able to make it through my first semester with a 3.0 GPA and still work 20 hours and do some volunteering. Now how's that for something to talk about. I was very disturbed by the Connecticut shooting, but I wasn't sure how to react. I think I might have cried a few times purely because I have aspergers and din't want to be compared or judged.
One of the best things that happened to me this month was that I got accepted into my first choices for college and I am starting next fall. I told my mom that life has been too easy on me. Getting accepted to every job I've ever wanted and all the colleges I wanted. She told me I have had my hardships, but really are they hard or just different than others.
I got to celebrate christmas eve with some great family friends that I truly miss. They had there friend from france over which was also a treat and had more positives than negatives. We played games, ate dinner and decorated cookies. Of course we had to eat some too. I don't think we left any for santa this year though. Too bad, he's fat enough anyway.
This year has been a year of growth and changes that I never though were possible. Really, if you set your mind to it, you can do it. I'm going to college, holding job and hanging out with friends. I'm making the plans and doing the leg work. What more could an aspie girl ask for?
Monday, December 31, 2012
Saturday, December 22, 2012
Fed Up!
The tragedy that happened in Connecticut is awful and I know its awful, but its way more complex than people realize. I like to compare it to the hunger games; the hunger games was a great book, but if you didn't think about what was in it, it was just well written. If you think in depth about the story there is a lot of politics and different points of view. I feel that the Connecticut massacre is the same way. I'm fine if you disagree though.
This is the biggest event that has happened during my life time other than 9/11 and the V-tech shooting. I was old enough to remember 9/11, but I was too young to watch the news or no the details. I was a little kid. On the other hand, during the V-Tech shooting, I was just old enough to understand what had happened and I thought the man was crazy.
Friday was a typical day for me, if you can say any of my days are typical. I have a smart phone so I can go on facebook anytime I want to. I was walking on campus when I decided to check facebook. The first thing I saw was about the stuff happening in Connecticut. I kept searching through facebook and that was all I could see, so I decided to see what had happened. Let me tell you, the day before we had a stabbing in our tiny little town. The stabbing was more a cut to someone's throat that sent them to the emergency room for stitches. It was small, but in a small scale community, it was a large event.
I went to my search engine and I typed in a news site. Breaking News, it read at the top. I looked to see what the story was and the story had the statistics of the massacre already listed. My little aspie brain didn't really no how to react. I was kind of in a daze thinking about the fact that facebook wasn't over populated like this during the aurora shooting and facebook wasn't like this during the Gabby Giffords event either. I personally was scared of thunderstorms all through childhood, so I knew the news people liked creating drama. I thought selfishly to myself that they don't need to create so much drama. I realized this and thought about it more and I thought about the facet that I was selfish, but also caring.
They don't need the drama, but its not because I am sick and tired of hearing about it. They don't need it because the Connecticut population needs time to recoup after the tragedy. I'm sure if something large happened to anyone of my friends, they would want some privacy. Hello HIPAA. Think about it though. Some pregnant women don't want friends to visit them in the hospital after delivery. Now think about how these families just lost there child and they sure don't need the media following them either.
As days past, the story got bigger. When the headline came through that the man who killed all those children had aspergers, my heart sunk. I was now going to be labelled as someone who could commit such awful crimes as killing people. It felt awful. This christmas eve we are going to have guests over that we have over every year, but they are brining a friend with them. I am constantly thinking about what that person will think about me and my quirks. What if he asks questions? The family knows I have aspergers. when he finds out, he'll surely be like, wow I was just at a murderers house. Its really hard being put with that group of people.
Next, the worst thing happened to me. A facebook friend posted some moronic status about how her son could surely kill her in the future because he has aspergers and he is violence. This caused a ton of outrage including a psychiatrists wife to comment, when her own daughter has autism. This friend then proceeded to bring up come backs telling us that her sons 60 year old teacher wasn't educated and she was trying to educate the public. So, she thinks by telling people that her son could be a mass murderer is going to educate the public more and have them become more accepting. I was outraged by this. I'm already having trouble coping with the fact that I won't have the aspergers label next year, I don't need people to be scared of me. If this lady thinks this stuff, I can't imagine what the public thinks.
To make things worse, I am a complete loud mouth. I don't know when to shut up about stuff. I will share with anyone who is willing to listen, that I have aspergers,which has always been a problem. Now what will happen if I tell someone that doesn't understand? They will compare me to Adam.
Yes, I care about the families that are suffering right now, but right now I am lost too. Aspergers used to be a part of me and I was happy to advocate for others and educate. Now I am scared too and I'm not sure what my purpose of having aspergers is. Maybe its just to prove that we aren't violent. I've already started proving that we are happy.
As days past, the story got bigger. When the headline came through that the man who killed all those children had aspergers, my heart sunk. I was now going to be labelled as someone who could commit such awful crimes as killing people. It felt awful. This christmas eve we are going to have guests over that we have over every year, but they are brining a friend with them. I am constantly thinking about what that person will think about me and my quirks. What if he asks questions? The family knows I have aspergers. when he finds out, he'll surely be like, wow I was just at a murderers house. Its really hard being put with that group of people.
Next, the worst thing happened to me. A facebook friend posted some moronic status about how her son could surely kill her in the future because he has aspergers and he is violence. This caused a ton of outrage including a psychiatrists wife to comment, when her own daughter has autism. This friend then proceeded to bring up come backs telling us that her sons 60 year old teacher wasn't educated and she was trying to educate the public. So, she thinks by telling people that her son could be a mass murderer is going to educate the public more and have them become more accepting. I was outraged by this. I'm already having trouble coping with the fact that I won't have the aspergers label next year, I don't need people to be scared of me. If this lady thinks this stuff, I can't imagine what the public thinks.
To make things worse, I am a complete loud mouth. I don't know when to shut up about stuff. I will share with anyone who is willing to listen, that I have aspergers,which has always been a problem. Now what will happen if I tell someone that doesn't understand? They will compare me to Adam.
Yes, I care about the families that are suffering right now, but right now I am lost too. Aspergers used to be a part of me and I was happy to advocate for others and educate. Now I am scared too and I'm not sure what my purpose of having aspergers is. Maybe its just to prove that we aren't violent. I've already started proving that we are happy.
Friday, December 14, 2012
Life is Good
I've said time and time again that my parents never really knew what to expect from me. They knew I was different and they knew I had struggles, but they didn't know what those struggles would mean. "She'll have to live in a group home when she grows up", my mom would hear from coworkers and friends. They only saw the disability in me though, not the potential to change the world. I may have struggles, but I still can succeed and that's what this is all about.
Last night I was laying on the couch in the living room surfing the net. "Go look on the table because there is something from Penn Tech there for you", my mom abruptly blurted out. There was no conversation. Heck we weren't even in the same room, but it was just a thought. "Is it my acceptance letter", I asked. She told me she didn't know and she told me I should probably just go open it up. We are already in the application process and continuously getting mail from them. It wasn't a real surprise, but most stuff comes through email.
I put my computer down and I jumped off the couch in anticipation. I was just thinking about college earlier. Earlier that day, I had attended a christmas dinner with my coworkers at a local restaurant. I thought about the fact that I had been going to these dinners for three years now and I probably wouldn't be coming back next year because I would be away at college. It was a really sad thought, but I knew it would be good. I went over to open the envelop and the first thing I saw was a HUGE financial aid packet. I thought about it and thought about the fact that I hadn't been accepted yet. I didn't understand why they were giving me junk about financial aid yet. I told my mom and she asked if there was anything else. I dug deep and found the letter.
I was accepted into Penn Tech for their pre-occupational therapy degree. It was so exciting to find this out. I haven't really applied anywhere else, but here. I wanted to go to Penn Tech, because I knew there teaching style and small classes would be perfect for me. They also have really nice housing. I shuffled through the papers as I thought how easy this was to be accepted. There is still a lot to do, but its just money and housing type stuff.
The fact is, I got into my first college of choice. There were days in my past that my parents didn't know I would be able to attend college. Today, its a true story, not just a fantasy. It took a lot of work to get where I am though. There were tears and there were giggles. There were triumphs and and also some hardships, but I have made it, even though I am lazy too.
After all the excitement I told my mom that life is too easy on me. I volunteered at an adult daycare when Iw as a teenager and now I work there. I have worked there for over a year now with aspergers. People with aspergers have an extremely hard time with social relationships and team work. My mom almost hoped I would get fired from my first job so that I could learn something, but that didn't happen. Even at my second job, I am still doing well.
Now after much nagging, I was accepted to my college of choice.I filled out the paper work and got my transcripts to them LAST MINUTE and I still got in. What on earth is this teaching me? All I can see is that its not that hard to just scoot by in life. I know thats not the case though and I can't get that thought stuck in my head, but even as an adult I have just had everything given too me. What is going to happen when something doesn't go my way? I can't just through a huge hissy fit.
I expressed to my mom how I felt about this and how easy this was. I told her that I didn't think I was learning anything thing and that I was just getting stuff without working. I'm not struggling right now. She replied by telling me not to jinx my self. lol She also told me that I have had a lot of my own struggles and hurdles that have been just as mighty to overcome. My response was, "What are you talking about, I don't get it." Yeah, after all the tears I have shed over losing friends, having teachers not understand me, not finding the right doctors, having people segregate me and so much more, I still bright and can overcome anything. I may fixate on stuff, but I let it go. I just keep chugging along!!!
Last night I was laying on the couch in the living room surfing the net. "Go look on the table because there is something from Penn Tech there for you", my mom abruptly blurted out. There was no conversation. Heck we weren't even in the same room, but it was just a thought. "Is it my acceptance letter", I asked. She told me she didn't know and she told me I should probably just go open it up. We are already in the application process and continuously getting mail from them. It wasn't a real surprise, but most stuff comes through email.
I put my computer down and I jumped off the couch in anticipation. I was just thinking about college earlier. Earlier that day, I had attended a christmas dinner with my coworkers at a local restaurant. I thought about the fact that I had been going to these dinners for three years now and I probably wouldn't be coming back next year because I would be away at college. It was a really sad thought, but I knew it would be good. I went over to open the envelop and the first thing I saw was a HUGE financial aid packet. I thought about it and thought about the fact that I hadn't been accepted yet. I didn't understand why they were giving me junk about financial aid yet. I told my mom and she asked if there was anything else. I dug deep and found the letter.
I was accepted into Penn Tech for their pre-occupational therapy degree. It was so exciting to find this out. I haven't really applied anywhere else, but here. I wanted to go to Penn Tech, because I knew there teaching style and small classes would be perfect for me. They also have really nice housing. I shuffled through the papers as I thought how easy this was to be accepted. There is still a lot to do, but its just money and housing type stuff.
The fact is, I got into my first college of choice. There were days in my past that my parents didn't know I would be able to attend college. Today, its a true story, not just a fantasy. It took a lot of work to get where I am though. There were tears and there were giggles. There were triumphs and and also some hardships, but I have made it, even though I am lazy too.
After all the excitement I told my mom that life is too easy on me. I volunteered at an adult daycare when Iw as a teenager and now I work there. I have worked there for over a year now with aspergers. People with aspergers have an extremely hard time with social relationships and team work. My mom almost hoped I would get fired from my first job so that I could learn something, but that didn't happen. Even at my second job, I am still doing well.
Now after much nagging, I was accepted to my college of choice.I filled out the paper work and got my transcripts to them LAST MINUTE and I still got in. What on earth is this teaching me? All I can see is that its not that hard to just scoot by in life. I know thats not the case though and I can't get that thought stuck in my head, but even as an adult I have just had everything given too me. What is going to happen when something doesn't go my way? I can't just through a huge hissy fit.
I expressed to my mom how I felt about this and how easy this was. I told her that I didn't think I was learning anything thing and that I was just getting stuff without working. I'm not struggling right now. She replied by telling me not to jinx my self. lol She also told me that I have had a lot of my own struggles and hurdles that have been just as mighty to overcome. My response was, "What are you talking about, I don't get it." Yeah, after all the tears I have shed over losing friends, having teachers not understand me, not finding the right doctors, having people segregate me and so much more, I still bright and can overcome anything. I may fixate on stuff, but I let it go. I just keep chugging along!!!
Monday, December 10, 2012
Merry Christmas To Me
So I got an early christmas present for myself and I thought I would share it with you all
When I got home from the store today my friend told me he was really nervous about his upcoming finals next week. He decided he would get a little studying done on this gloomy day.
My friend got really tired from studying and he had a little bit of a stuffy head anyway so he decided to cuddle up and watch some television. I decided to give him some tissues and the remote so he didn't have to get up for anything.
After relaxing for so long, he got a little rambunctious. I had to calm him down and tell him that he can't always be so wild, but it was too funny not to take a picture before I made him get down. I wish I could hang like this.
My friend isn't very nice and so he decided to take advantage of me. He wanted to see how far was too far and how much he could get away with, so he decided play a game of hide and seek. Fortunately he's bigger than he thinks he is and I didn't have a problem finding him.
Okay, so I had to tell him his hiding spots just weren't good enough and that if we were going to play hide and seek he had to find better spots. So, guess what??? He did. The laundry shoot. It was a good idea for me, but it sure wasn't the smartest idea on his part. I'm sure his head is still throbbing from that fall.
When I got home from the store today my friend told me he was really nervous about his upcoming finals next week. He decided he would get a little studying done on this gloomy day.
My friend got really tired from studying and he had a little bit of a stuffy head anyway so he decided to cuddle up and watch some television. I decided to give him some tissues and the remote so he didn't have to get up for anything.
After relaxing for so long, he got a little rambunctious. I had to calm him down and tell him that he can't always be so wild, but it was too funny not to take a picture before I made him get down. I wish I could hang like this.
Once I scolded him for being such a naughty bear, he decided that he would help me with my puzzle. He was a little selfish with it and didn't let me help though, so I sat there and took pictures to keep me busy.
My friend isn't very nice and so he decided to take advantage of me. He wanted to see how far was too far and how much he could get away with, so he decided play a game of hide and seek. Fortunately he's bigger than he thinks he is and I didn't have a problem finding him.
Okay, so I had to tell him his hiding spots just weren't good enough and that if we were going to play hide and seek he had to find better spots. So, guess what??? He did. The laundry shoot. It was a good idea for me, but it sure wasn't the smartest idea on his part. I'm sure his head is still throbbing from that fall.
After our intense game of hide and go seek, Mr. Bear decided he needed to go sleep. He thought it might help with the whopper migraine he got from his fall. He climbed up the stairs and decided he wanted to sleep in my parents room instead of mine. Silly Bear!!!
Saturday, December 1, 2012
Wake Up
Giggles had burst from the kitchen, up the stairs and through the hall at 7 o'clock this morning. It wasn't the best way to wake up for this chick who doesn't sleep through the night 80% of the time. I woke myself up enough to figure out what was going on, check the time and slam my head back onto my pillow. I snuggled up with my stuffed animals, covered up with my weighted blanket and took some deep breaths as I tried to ease myself back into a light sleep. I finally decided that I was going to get off my lazy butt and tromp down the stairs to see who was here.
I got to the bottom of the stairs, walked into the kitchen with my head tilted over to the left in my half asleep pose. "Good Morning", I said to my mom in the groggiest voice you could imagine. "Put your head back up J, geesh", my mom replied back. I did a check over my body making sure I was okay. Everything was alright I was just half asleep. I put my head up and my eyes on mom!!! "It's only 7 o'clock, can I go back to sleep?" Yes, head right on up.
I scuffled my tired feet up the stairs and curled right back up in bed. I got situated with my stuffed animals and weighted blankets. I was already to go back and get an extra hour of sleep. I threw my head back down on my pillow and closed my eyes all ready to take a nap. Ding Dong!!! The second I laid my head down the, door bell rang. "Who on earth could be coming to the door at this hour?" I thought. I lay there in bed thinking about the fact that I just got my lazy but out of bed to tromp down the stairs to see why everyone was laughing. My mother was awake, grandma was awake, and Vicki a family friend was just leaving to go to work for the day; Vicki takes showers at our house everyday after the gym since she lives a town over from us and needs to go to work. It was a typical morning, but grandma was awake before me.
I lay there wide awake in bed pleading to get some sleep. I hear the chitter chatter of the women downstairs. I recognized the voices. "Hello Pam", my mother shouted, which bellowed through the house. Our cleaning lady had just arrived. Let me remind you that this was before 7:30 in the morning and I don't have to be to work until 9. "Hello" She sat her cup of coffee down and headed straight for the laundry room as she always does. As I listen to them talk, I finally decide that maybe I should go down stairs. The whole house is awake. I head down stairs, Pam is in the laundry room and my mother and grandma are sitting at the kitchen table chowing down on breakfast. This is not your typical morning!!!
I head to our freezer which is in the laundry room, look to the top and find out that my Captain Crunch is gone. Next, I head back into the kitchen, look around to see what else is for breakfast and I see a cake sitting there. The cake is still un-iced so there goes that option. I re-enter the laundry room, look up and grab a bowl of Cinnamon Toast Crunch. My Favorite!!!
I pour a bit of milk into my cereal and head to the television room, to watch the Today Show as I and eat my breakfast whilst still in my pajamas. "Change into clothes before you eat breakfast", my mother snaps at me. "I don't have to leave for another hour, leave me alone", I snap back at her. I eat my breakfast and come back into the kitchen to be social where I find my mother icing the darn cake. If only I had waited a bit I could have had cake for breakfast. "Cereal is healthier", I think to myself, "it will be okay".
I finish up breakfast and relax for a little bit before I head out the door. I sit in the dining room to work on a puzzle while my mom and grandma chat over coffee. "Call Heather and tell her your going to be late", my mom tells me. I get up and call Heather who is my boss at work, she is always great about dealing with my tardiness. She knows we have transportation difficulties."I'm going to be a little late today because my grandmother is leaving", I tell her. "That's fine", she says. Secretly in my head I know exactly what is about to happen. My mom hopes to wait until 9:30 to take me to work, but at 8:45 the door busts open again.
"Good Morning", I hear in the most charming voice I know. My1cent had just arrived to work for the day. She also seems to be my personal taxi driver too. "Yes!!!" Purely due to My1cent bursting through the door, I know that my driver has switched over to her. I put a huge smile on my face, change into clothes, put my shoes on and grab my lunch. I am ready to head out the door. "I knew this was going to happen." I'm sure when My1cent walked in, she thought the same thing. As we head out the door I am already shooting questions at her about her kids and how they are. I asked her about her new house and the puppy. I asked her when I could come over again.
We get onto one of the main roads in our city and head towards my job at an adult daycare. We always pass a McDonalds on the way. For a while it was closed because they were doing some massive remodeling which completely through my1cent and I for a tail spin. We're both addicted to sweet teas.
Many days you will hear me asking my mom fi we can stop and get sweet tea on the way to our final destination. "Can we stop and get sweet tea?" This question is normally followed by "no we don't have time honey" which typically comes from my mother. One time it was then followed by, "its so addicting." "Honey, McDonald's sweet tea is like the crack of ice tea", my mom once said. True story and this goes to show how much we love it.
My1cent and I nearly speed by McDonald's in a race to get to work. At the last my minute I ask her her pretty please with a cherry on top if we can stop an get sweet teas. "It''s too late", she tells me since have already past the entrance supposedly. "No there is another one here." "Alright fine", she says as we pull into McDonald's. I grin from ear to ear. We grab our sweet teas and head off to work where I actually arrive fifteen minutes early. Fancy that!!!
I head into work, put my sweet tea in the kitchen and greet the chef. I fill out my time sheet and check to see what we are doing for the day. That day we ended up making wreaths which were absolutely adorable. This goes to show you that I have no choice be flexible anymore. i am a grown women who is learning how to function in society. Just because I have aspergers doesn't mean I can't be happy or flexible. What keeps me happy is staying busy. Most days I would fixate on how crappy my morning would be, but on this day I was a rockstar and laughed instead.
I got to the bottom of the stairs, walked into the kitchen with my head tilted over to the left in my half asleep pose. "Good Morning", I said to my mom in the groggiest voice you could imagine. "Put your head back up J, geesh", my mom replied back. I did a check over my body making sure I was okay. Everything was alright I was just half asleep. I put my head up and my eyes on mom!!! "It's only 7 o'clock, can I go back to sleep?" Yes, head right on up.
I scuffled my tired feet up the stairs and curled right back up in bed. I got situated with my stuffed animals and weighted blankets. I was already to go back and get an extra hour of sleep. I threw my head back down on my pillow and closed my eyes all ready to take a nap. Ding Dong!!! The second I laid my head down the, door bell rang. "Who on earth could be coming to the door at this hour?" I thought. I lay there in bed thinking about the fact that I just got my lazy but out of bed to tromp down the stairs to see why everyone was laughing. My mother was awake, grandma was awake, and Vicki a family friend was just leaving to go to work for the day; Vicki takes showers at our house everyday after the gym since she lives a town over from us and needs to go to work. It was a typical morning, but grandma was awake before me.
I lay there wide awake in bed pleading to get some sleep. I hear the chitter chatter of the women downstairs. I recognized the voices. "Hello Pam", my mother shouted, which bellowed through the house. Our cleaning lady had just arrived. Let me remind you that this was before 7:30 in the morning and I don't have to be to work until 9. "Hello" She sat her cup of coffee down and headed straight for the laundry room as she always does. As I listen to them talk, I finally decide that maybe I should go down stairs. The whole house is awake. I head down stairs, Pam is in the laundry room and my mother and grandma are sitting at the kitchen table chowing down on breakfast. This is not your typical morning!!!
I head to our freezer which is in the laundry room, look to the top and find out that my Captain Crunch is gone. Next, I head back into the kitchen, look around to see what else is for breakfast and I see a cake sitting there. The cake is still un-iced so there goes that option. I re-enter the laundry room, look up and grab a bowl of Cinnamon Toast Crunch. My Favorite!!!
I pour a bit of milk into my cereal and head to the television room, to watch the Today Show as I and eat my breakfast whilst still in my pajamas. "Change into clothes before you eat breakfast", my mother snaps at me. "I don't have to leave for another hour, leave me alone", I snap back at her. I eat my breakfast and come back into the kitchen to be social where I find my mother icing the darn cake. If only I had waited a bit I could have had cake for breakfast. "Cereal is healthier", I think to myself, "it will be okay".
I finish up breakfast and relax for a little bit before I head out the door. I sit in the dining room to work on a puzzle while my mom and grandma chat over coffee. "Call Heather and tell her your going to be late", my mom tells me. I get up and call Heather who is my boss at work, she is always great about dealing with my tardiness. She knows we have transportation difficulties."I'm going to be a little late today because my grandmother is leaving", I tell her. "That's fine", she says. Secretly in my head I know exactly what is about to happen. My mom hopes to wait until 9:30 to take me to work, but at 8:45 the door busts open again.
"Good Morning", I hear in the most charming voice I know. My1cent had just arrived to work for the day. She also seems to be my personal taxi driver too. "Yes!!!" Purely due to My1cent bursting through the door, I know that my driver has switched over to her. I put a huge smile on my face, change into clothes, put my shoes on and grab my lunch. I am ready to head out the door. "I knew this was going to happen." I'm sure when My1cent walked in, she thought the same thing. As we head out the door I am already shooting questions at her about her kids and how they are. I asked her about her new house and the puppy. I asked her when I could come over again.
We get onto one of the main roads in our city and head towards my job at an adult daycare. We always pass a McDonalds on the way. For a while it was closed because they were doing some massive remodeling which completely through my1cent and I for a tail spin. We're both addicted to sweet teas.
Many days you will hear me asking my mom fi we can stop and get sweet tea on the way to our final destination. "Can we stop and get sweet tea?" This question is normally followed by "no we don't have time honey" which typically comes from my mother. One time it was then followed by, "its so addicting." "Honey, McDonald's sweet tea is like the crack of ice tea", my mom once said. True story and this goes to show how much we love it.
My1cent and I nearly speed by McDonald's in a race to get to work. At the last my minute I ask her her pretty please with a cherry on top if we can stop an get sweet teas. "It''s too late", she tells me since have already past the entrance supposedly. "No there is another one here." "Alright fine", she says as we pull into McDonald's. I grin from ear to ear. We grab our sweet teas and head off to work where I actually arrive fifteen minutes early. Fancy that!!!
I head into work, put my sweet tea in the kitchen and greet the chef. I fill out my time sheet and check to see what we are doing for the day. That day we ended up making wreaths which were absolutely adorable. This goes to show you that I have no choice be flexible anymore. i am a grown women who is learning how to function in society. Just because I have aspergers doesn't mean I can't be happy or flexible. What keeps me happy is staying busy. Most days I would fixate on how crappy my morning would be, but on this day I was a rockstar and laughed instead.
Sunday, November 25, 2012
emergency room visit
It was a late July day and I was wrapping up my time at a Transition conference. I had just given a speech about disability awareness and went to sit down and listen to others presentations before we had to say good bye.
When I sat down, I got prepared to listen to the next presentation. As I sat there and listened, I started thinking about other stuff that was on my mind. I wasn't fully tuned into the presentation like i was supposed to be. I remember sitting there and almost starting to day dream or go into deep thought. It was a deep thought that I couldn't get out of and it scared me.
As soon as I noticed something was wrong, I got up and walked across the room to a young woman in a bright orange sweatshirt. Unbeknownst to me, I told this woman that I was having an anxiety attack and that I needed to take a walk. She got up and took me for a walk to help calm me down since I was really confused. I didn't know where I was or what I was doing.
When the girl in the orange sweatshirt took me on a walk, we ran into a family friend of mine. Her name was Cindy. Cindy recognized that I was having trouble and came to help me. I also told her that I thought I was having an anxiety attack. Cindy tried to calm me down to no avail. She decided it would be a good idea to call my mom to come get me early. It wouldn't hurt to get me early since there were only 15 minutes left to the conference.
We finally got a hold of my mom and let her know what had happened. She said that she would be right there since she was only a five minute drive away. She rushed in and got me to take me home so I could relax
When my mom picked me up from the conference, she had planned on taking me to Honeybaked ham, one of my favorite fast food restaurants for lunch. When she found out I had the episode, she decided she would still see if I wanted to go. I decided I wanted to go because I thought it would cheer me up and get my mind off of what just happened. I thought it would distract me.
When we got home from Honeybaked Ham, my mom called the doctor to document what happened and to see if she should do anything. The doctor told my mom that I had to go to the emergency room. I posted on facebook that I was headed there and I asked for prayers.
going to the ER right now!!! Prayers please, more later!!! :(
When I posted on facebook that I need prayers, my friend Michelle who came in from out of town out saw it. It just so happened that she was coming up to visit us later that evening. When she saw this she was shocked that I was in the emergency room and asked if we still wanted her company. Without a doubt we said yes. She came up to our house later and waited for us to come home.
When my mom and I were in the waiting room of the emergency department, we were told by the nurses that I had to have a fall risk bracelet on in case I had another seizure I knew I wasn't going to have another one of these seizures again, because I have had them several times before. I never have more than one in a row. This was the first time my doctor wanted me to see an emergency room doctor. They told me it was just precautionary.
When we arrived home from the emergency room, we brought a pizza home for dinner too. It was really yummy since I hadn't had food since lunch time. It was 8:30 by the time we got home.
I had to be sleep deprived for a diagnostic test so my friend Emma invited me over to her place to make Christmas cookies and hang out so my parents could get some sleep. Every year since we were young children, our families would get together for Christmas Eve. We have dinner, decorate cookies and exchange gifts. Emma had been in France the previous Christmas and she wanted to make up for the cookie decorating we missed.
When I had my follow up appointment with my neurologist to go over the results of the diagnostic testing, he told me that it was more likely than not that I had epilepsy. He suggested I get a medical alert bracelet so I can be more independent on campus. He was worried that I would have a seizure in class or while I was crossing a road
Another thing we had discussed with the neurologist was my ability to drive. He told me that as long as I was on medicine and didn't have a seizure for at least six months, he would let me drive. My dad makes signs and decided to make these magnets to put on the back of our car. He thought it would help us stay safe
Our friends that had visited the same weekend I had the seizure could tell I wasn't myself. I was really tired. I also had some problems with my speech and memory that have now resolved themselves. They were part of the post-ictal state of my seizure. This means that it was the side affects I get after a seizure that make you feel yucky. Since my friend saw this she decided to sent me a get well soon card a couple days later. It made me feel really happy during this really rough time
Friday, November 23, 2012
Defining Typical
I always grew up wanting to be "neurotypical". What does that mean though? Well I thought it meant being normal, being just like everyone else. There is no such thing as being like everyone else though because no one is normal. I always like to use the terms typical and neurotypical, but the fact is they don't really mean anything nor do they matter. What matters is being unique and interesting as opposed to being boring.
Today I went to work just like any other day. I had a break for lunch where instead of eating in the break room, I ate out in the store because I didn't want to listen to a bunch of coworkers cutting dry ice in the back. I sat there eating a yummy bowl of macaroni and cheese as I scrolled through my texts. One of the texts was asking me what I wanted to do today. I sat there for a minute and thought about what I wanted to do. I couldn't think of anything in particular so I sent a message back letting them know. I sat back and took another bite, thinking about what I had just done. I had just made several huge accomplishments just by sending one text message.
You may think that is not a huge deal, but it really is. First of all I always insist on talking to people on the phone because of the complications I have relating to expressive language due to my aspergers. Sometimes its a lot easier to express my self and get my point across by verbalizing what I want to say as opposed to written communication. On the other hand sometimes I can express more through my blog than I can at any given time to my parents. Fancy That!!! This was a huge step using texting as a form of social communication as opposed to the typical communication of important details or questions and answers. For instance if someone texts me "hey whats up", chances are that I am not going to reply simply because I absolutely hate texting, but today was different.
I sat there thinking about how typical I was to be chilling there just texting friends. I felt cool and typical (whatever that means). I felt like I was normal, but there is no such thing as normal, there is only such thing as conforming to your societies expectations. Not everyone goes walking around town with a blue afro do they? (some people do and that doesn't conform to standards.) That doesn't mean they have aspergers, but since I am repetitive and have trouble with friends I am not typical. (May I also add this was actually a specific example I saw in my community).
I proceed to think that this isn't only social texting, but I am setting up plans to hang out with a friend. Not just a friend, but someone I can call a close friend. Its no 10:30 at night and I have been hanging out with her since 4 today. We are sitting in my family room watching television together with my parents. It came so natural to me. We just started texting and decided to hang out. We had already talked about it last week too which amazes me even more. I have lost count the number of times my parents and therapist have told me that if I want to hang out with friends, I need to plan a couple days in advance compared to when I was little and able to call someone and play all in the same day. there was no searching, my friend was there.
I remember a couple therapy sessions, probably when I was in middle school that we discussed who were my friends and who were my acquaintances. We talked about the fact that just because I knew someone my whole life or just be they loved me didn't mean they were my best friend. it took much more. It took two people talking on regular basis to become best friends, but it was okay to just have friends.
My mom would always reassure me that I would have a real friend one day, but I'm not sure I believed her. I didn't really understand the concept to begin with. I would compare friends to this scenario but none of them would add up to real friends. I had just about given up until this year. I can officially say I have a real friend now. We text most days and we hang out at least once a week. We will sit in my kitchen for hours just laughing. Every wednesday my friend picks me up from work and takes me home where we have dinner and watch television with each other. Sometimes we do a craft and sometimes we play a game. This is a friend that is part of my family now. She feel at home at my house.
I don't have to worry about going up stairs and taking a shower when she is over. She doesn't have to worry about being served ever piece of food and every drink. She can walk into my kitchen and eat a snack we have sitting around without being judged. I don't have to worry when I am with her. We are living human beings and we all make mistakes. Tonight we went out for dinner and I paid for dinner for the family and my friend paid for dessert. We are always there for each other and she is someone who we all family. Heck she weathered the Sandy out at our house.
I never thought that I was this typical if that is even a way to define typical. Just because I have some sill label doesn't mean I have a life sentence. I can be happy, I can have friends. I can have best friends and much more.
There was a little boy I knew about named Nickolas. He had a fatal condition called anencephaly. He wasn't supposed to live but he did. I have to live every day by using the phrase, "If I say I can do something, I can do it", because guess what, Nickolas did it 3.5 almost 4 years. If nickolas can overcome obstacles such as life, I can overcome obstacles and defy odds and make friends. If you want to say I am an unhappy not typical human being that functions in society, so be it, but I am a strong and happy aspie who is achieving more and more everyday.
Every year my family goes around and say what each of us our thankful for. This year I expressed how thankful for how independent I was. My mother was told when I was little, that I would live in a group home when I grew up and that I would never be able to live on my own. Guess what peeps, I am going to college, getting decent grades and having some days lasting 13 hours with out needing my parents for anything. Take that!!!
Today I went to work just like any other day. I had a break for lunch where instead of eating in the break room, I ate out in the store because I didn't want to listen to a bunch of coworkers cutting dry ice in the back. I sat there eating a yummy bowl of macaroni and cheese as I scrolled through my texts. One of the texts was asking me what I wanted to do today. I sat there for a minute and thought about what I wanted to do. I couldn't think of anything in particular so I sent a message back letting them know. I sat back and took another bite, thinking about what I had just done. I had just made several huge accomplishments just by sending one text message.
You may think that is not a huge deal, but it really is. First of all I always insist on talking to people on the phone because of the complications I have relating to expressive language due to my aspergers. Sometimes its a lot easier to express my self and get my point across by verbalizing what I want to say as opposed to written communication. On the other hand sometimes I can express more through my blog than I can at any given time to my parents. Fancy That!!! This was a huge step using texting as a form of social communication as opposed to the typical communication of important details or questions and answers. For instance if someone texts me "hey whats up", chances are that I am not going to reply simply because I absolutely hate texting, but today was different.
I sat there thinking about how typical I was to be chilling there just texting friends. I felt cool and typical (whatever that means). I felt like I was normal, but there is no such thing as normal, there is only such thing as conforming to your societies expectations. Not everyone goes walking around town with a blue afro do they? (some people do and that doesn't conform to standards.) That doesn't mean they have aspergers, but since I am repetitive and have trouble with friends I am not typical. (May I also add this was actually a specific example I saw in my community).
I proceed to think that this isn't only social texting, but I am setting up plans to hang out with a friend. Not just a friend, but someone I can call a close friend. Its no 10:30 at night and I have been hanging out with her since 4 today. We are sitting in my family room watching television together with my parents. It came so natural to me. We just started texting and decided to hang out. We had already talked about it last week too which amazes me even more. I have lost count the number of times my parents and therapist have told me that if I want to hang out with friends, I need to plan a couple days in advance compared to when I was little and able to call someone and play all in the same day. there was no searching, my friend was there.
I remember a couple therapy sessions, probably when I was in middle school that we discussed who were my friends and who were my acquaintances. We talked about the fact that just because I knew someone my whole life or just be they loved me didn't mean they were my best friend. it took much more. It took two people talking on regular basis to become best friends, but it was okay to just have friends.
My mom would always reassure me that I would have a real friend one day, but I'm not sure I believed her. I didn't really understand the concept to begin with. I would compare friends to this scenario but none of them would add up to real friends. I had just about given up until this year. I can officially say I have a real friend now. We text most days and we hang out at least once a week. We will sit in my kitchen for hours just laughing. Every wednesday my friend picks me up from work and takes me home where we have dinner and watch television with each other. Sometimes we do a craft and sometimes we play a game. This is a friend that is part of my family now. She feel at home at my house.
I don't have to worry about going up stairs and taking a shower when she is over. She doesn't have to worry about being served ever piece of food and every drink. She can walk into my kitchen and eat a snack we have sitting around without being judged. I don't have to worry when I am with her. We are living human beings and we all make mistakes. Tonight we went out for dinner and I paid for dinner for the family and my friend paid for dessert. We are always there for each other and she is someone who we all family. Heck she weathered the Sandy out at our house.
I never thought that I was this typical if that is even a way to define typical. Just because I have some sill label doesn't mean I have a life sentence. I can be happy, I can have friends. I can have best friends and much more.
There was a little boy I knew about named Nickolas. He had a fatal condition called anencephaly. He wasn't supposed to live but he did. I have to live every day by using the phrase, "If I say I can do something, I can do it", because guess what, Nickolas did it 3.5 almost 4 years. If nickolas can overcome obstacles such as life, I can overcome obstacles and defy odds and make friends. If you want to say I am an unhappy not typical human being that functions in society, so be it, but I am a strong and happy aspie who is achieving more and more everyday.
Every year my family goes around and say what each of us our thankful for. This year I expressed how thankful for how independent I was. My mother was told when I was little, that I would live in a group home when I grew up and that I would never be able to live on my own. Guess what peeps, I am going to college, getting decent grades and having some days lasting 13 hours with out needing my parents for anything. Take that!!!
Thursday, November 22, 2012
Thankfulness
I'm trying something new today. I am going to write what I am thankful for. It is the month of thanks and giving isn't it?
1. I am thankful for my family. They come first and foremost ahead of everything else. My parents have been there to support me through every step of my life. They have supported me in the decisions/choices I have made and they have helped over come the obstacles I have face in my life. I have to give thanks to them because I wouldn't be who I am if it weren't for them.
2. I am thankful for Melissa and Dickinson Mental Health. I wouldn't have come as far as I have it it weren't for them. If it meant driving long distance to see the specialists I needed to see to get this far in my life with success, I wouldn't have it any other way. I thank you guys for not only providing services, but reaching out to satellite offices where you can see more clients. I thank you for holding a charity ball that raises money for autism awareness and more services. I thank you for the invitation to the charity ball this year where I was able to share my success. I thank you for supporting my blogging experience and letting me share and advocate for others. I thank you for letting me instill in others that people on the spectrum can be happy.
3. I am thankful for camp chameleon. Camp chameleon was there for me for 10 years. I will never forget the day when I met my neurologist Dr. Famiglio for the first time. She introduced me to camp and I went until I was to old. I am fortunate enough to give back to those who helped me so much. I am thankful for the experiences you have given me to just be a kid. The experiences you have given me to be in nature. The experiences to be exposed to others with special needs. The experiences that have helped me build my foundation to help others as an adult. You did so much for me. I remember the carnival, and the dog show my first year. I remember the bug treasure hunt in the med shed my second year. I remember making soda/mentos rockets one year. I remember climbing the rock wall for the first time. I remember going down the zipline the first time. I remember the movies we made. I remember when cat in the hat visited my cabin. I remember elmer fud. I remember the gigantic alien that came visited us. I remember the hay rides and the sheriff's house. I remember KJ the guitar lady. I still love her. I remember king joe. I remember the pudding contests. I remember my first time in the tree house. I remember play the drums with K. I remember trick-or treating and J chasing after my rabbit tale. I remember the J trio. I remember the aster egg hunt, the thanksgiving dinner and the unbirthday. I remember when Santa came to visit. I love you all and can't thank you enough.
4. I want to thank big brothers, bit sisters. I will never forget the day my mother called you out of urgency. It was during a time I was struggling. You told us that the wait wouldn't be long. I remember having my intake and thinking how fortunate I was to be able to have a big sister. I remember meeting my big sister. I remember asking if I could have been matched by my birthday. I remember having that wish come true. I remember the great activities I did with my bigs. I remember the picnics. I remember the day we got to meet the women's basketball team. I remember our girls groups. I remember the positive and caring situations I was always placed in with you guys.
5. I want to thank Melissa that has been there all the way for me. Melissa you stepped into my life at just t he right time. I was just starting high school and we didn't know what we were getting into. You were there and you understood me. You understood my family and you understood what we needed. You understood that I was unique and that you could still help me. You were able to give me practical strategies. You were there when you had to leave, to guide us in the right direction. You were there when we didn't want to start traveling. You were there when we decided we wanted to travel. You were there to suggest I start writing a blog. You were there to encourage me through rough times. You were there with your spirits high when I was struggling with driving. You were there.
6. I am thankful for sunny days and there understanding of me. To be blunt and honest, I would probably be fired from any other job if I gave them the crap I give you guys. You were there when I was growing and learning how to deal with people. You pushed me when Iw as stubborn. You were there when you knew things weren't right. You are there to be an advocate and teacher for me. You are there to help me do better. You have a connection with my mom like no other.
7. The creamery is always there for me as a peer oriented job. I thank the creamery for being a more task oriented job. This job is a place to interact with my typical peers and to feel good about myself. You are there as a social outlet. I don't know what I did without you before. Thank you
8. i have to thank the doctors that have kept there cool with my nonsense. I have to thank them for listening to me even when things don't make sense. I need to thank the doctors who think my side affect complaints are weird, but trust me when I say they are real. The doctors are there to show me that I everything will be okay. They are there to keep me healthy. If I didn't have doctors who listened, I probably wouldn't be sane right now. DARN LAMICTAL
9. I'm thankful for the autism support group on campus. I am thankful for the friends I have made through there. The experiences I have been able to share and learn from are more than I can ask for. I have somewhere that I can go and learn from others just like me. I have a place where I can use clinical terms that people understand because they have the same issues. I have peers that get my sense of humor. I have people to hang out with and who don't care that I am different.
10. I am thankful for my mothers coworker who has saved me form the brink of insanity on a number of occasions. In October of last year she had started working for my mom from our house. A couple days before thanksgiving I had asked if she could bring her kids up to hang out the day before thanksgiving. The Tuesday before Thanksgiving her kids were in a car accident when she called us to let us know she wasn't sure she would make it in. Today her kids are doing great and she did come in for a little bit that wednesday. She decided she had to leave early though which made me upset. She understood me though and knew I struggled with change. She took the effort to let me and her daughter make cookies and then we went grocery shopping. She compromised by taking me to get groceries since she couldn't stay the whole day. She is always there for me and my mother. The trips to the bank and to the grocery store to keep me stimulated. The stays at her house so I could have a break from my own family and since I can't have typical sleep overs. The safety net when my parents are away. The lunches out with my mother and I to the waffle shop and quickie chickie. The McDonald's sweet teas she insists on us getting even though I don't sleep at night. The times when we turn across a 4-5 lane. She is also there to support us when my mothers thinks I am going to be famous due to some reality show. She is there for my mother and I.
11. I'm thankful for so many things in my life. The fact that I have a roof over my head and a family to love me. I have people that care about me and I have hope for the future. I may not have said everything I am thankful for but there are so many things. I have thankfulness in my heart.
1. I am thankful for my family. They come first and foremost ahead of everything else. My parents have been there to support me through every step of my life. They have supported me in the decisions/choices I have made and they have helped over come the obstacles I have face in my life. I have to give thanks to them because I wouldn't be who I am if it weren't for them.
2. I am thankful for Melissa and Dickinson Mental Health. I wouldn't have come as far as I have it it weren't for them. If it meant driving long distance to see the specialists I needed to see to get this far in my life with success, I wouldn't have it any other way. I thank you guys for not only providing services, but reaching out to satellite offices where you can see more clients. I thank you for holding a charity ball that raises money for autism awareness and more services. I thank you for the invitation to the charity ball this year where I was able to share my success. I thank you for supporting my blogging experience and letting me share and advocate for others. I thank you for letting me instill in others that people on the spectrum can be happy.
3. I am thankful for camp chameleon. Camp chameleon was there for me for 10 years. I will never forget the day when I met my neurologist Dr. Famiglio for the first time. She introduced me to camp and I went until I was to old. I am fortunate enough to give back to those who helped me so much. I am thankful for the experiences you have given me to just be a kid. The experiences you have given me to be in nature. The experiences to be exposed to others with special needs. The experiences that have helped me build my foundation to help others as an adult. You did so much for me. I remember the carnival, and the dog show my first year. I remember the bug treasure hunt in the med shed my second year. I remember making soda/mentos rockets one year. I remember climbing the rock wall for the first time. I remember going down the zipline the first time. I remember the movies we made. I remember when cat in the hat visited my cabin. I remember elmer fud. I remember the gigantic alien that came visited us. I remember the hay rides and the sheriff's house. I remember KJ the guitar lady. I still love her. I remember king joe. I remember the pudding contests. I remember my first time in the tree house. I remember play the drums with K. I remember trick-or treating and J chasing after my rabbit tale. I remember the J trio. I remember the aster egg hunt, the thanksgiving dinner and the unbirthday. I remember when Santa came to visit. I love you all and can't thank you enough.
4. I want to thank big brothers, bit sisters. I will never forget the day my mother called you out of urgency. It was during a time I was struggling. You told us that the wait wouldn't be long. I remember having my intake and thinking how fortunate I was to be able to have a big sister. I remember meeting my big sister. I remember asking if I could have been matched by my birthday. I remember having that wish come true. I remember the great activities I did with my bigs. I remember the picnics. I remember the day we got to meet the women's basketball team. I remember our girls groups. I remember the positive and caring situations I was always placed in with you guys.
5. I want to thank Melissa that has been there all the way for me. Melissa you stepped into my life at just t he right time. I was just starting high school and we didn't know what we were getting into. You were there and you understood me. You understood my family and you understood what we needed. You understood that I was unique and that you could still help me. You were able to give me practical strategies. You were there when you had to leave, to guide us in the right direction. You were there when we didn't want to start traveling. You were there when we decided we wanted to travel. You were there to suggest I start writing a blog. You were there to encourage me through rough times. You were there with your spirits high when I was struggling with driving. You were there.
6. I am thankful for sunny days and there understanding of me. To be blunt and honest, I would probably be fired from any other job if I gave them the crap I give you guys. You were there when I was growing and learning how to deal with people. You pushed me when Iw as stubborn. You were there when you knew things weren't right. You are there to be an advocate and teacher for me. You are there to help me do better. You have a connection with my mom like no other.
7. The creamery is always there for me as a peer oriented job. I thank the creamery for being a more task oriented job. This job is a place to interact with my typical peers and to feel good about myself. You are there as a social outlet. I don't know what I did without you before. Thank you
8. i have to thank the doctors that have kept there cool with my nonsense. I have to thank them for listening to me even when things don't make sense. I need to thank the doctors who think my side affect complaints are weird, but trust me when I say they are real. The doctors are there to show me that I everything will be okay. They are there to keep me healthy. If I didn't have doctors who listened, I probably wouldn't be sane right now. DARN LAMICTAL
9. I'm thankful for the autism support group on campus. I am thankful for the friends I have made through there. The experiences I have been able to share and learn from are more than I can ask for. I have somewhere that I can go and learn from others just like me. I have a place where I can use clinical terms that people understand because they have the same issues. I have peers that get my sense of humor. I have people to hang out with and who don't care that I am different.
10. I am thankful for my mothers coworker who has saved me form the brink of insanity on a number of occasions. In October of last year she had started working for my mom from our house. A couple days before thanksgiving I had asked if she could bring her kids up to hang out the day before thanksgiving. The Tuesday before Thanksgiving her kids were in a car accident when she called us to let us know she wasn't sure she would make it in. Today her kids are doing great and she did come in for a little bit that wednesday. She decided she had to leave early though which made me upset. She understood me though and knew I struggled with change. She took the effort to let me and her daughter make cookies and then we went grocery shopping. She compromised by taking me to get groceries since she couldn't stay the whole day. She is always there for me and my mother. The trips to the bank and to the grocery store to keep me stimulated. The stays at her house so I could have a break from my own family and since I can't have typical sleep overs. The safety net when my parents are away. The lunches out with my mother and I to the waffle shop and quickie chickie. The McDonald's sweet teas she insists on us getting even though I don't sleep at night. The times when we turn across a 4-5 lane. She is also there to support us when my mothers thinks I am going to be famous due to some reality show. She is there for my mother and I.
11. I'm thankful for so many things in my life. The fact that I have a roof over my head and a family to love me. I have people that care about me and I have hope for the future. I may not have said everything I am thankful for but there are so many things. I have thankfulness in my heart.
Friday, November 16, 2012
I'm a real boy
If you know me, you know that my family and I are huge disney fans. I have been to disney more times than I can count, have a whole disney scrapbook and could probably find something in my life that resembles disney. Tonight I am going to relate myself to Pinnochio. Pinnochio was once a wooden doll that a man had built, but then in the end, he was a real boy. Today I feel like that real boy because I feel like a typical human being too. I have always used aspergers as an excuse or a crutch, but right now I don't even feel like I have it. Trust me if you have it, you feel different! People with aspergers get insulted when people that are neurotypical think they don't have aspergers because they do struggle.
In our school district k-5 is elementary school, 6-8 is middle school and 9-12 is high school. When i started 6th grade at the middle school, I was released of some of the supports I originally had in elementary school. I was in learning support only as needed. I really started to struggle academically so I got involved in home schooling. I used this as a time to catch up.
When I was home schooled, there was no way my mother would home school me. My mother had her own business to run and two kids to take care of. Everyone has their strengths and weaknesses and home schooling was not a strength of hers and that was okay. I ended up getting home schooled by a family friend of ours who taught two other girls. We had a regular school day, but we worked on our own school material, had recess and went out to eat once a week. We would typically go out on friday's to a restaurant of our choice and sometimes we would go to Olive Garden on Thursdays. Having recess and going out to eat were great times to practice our social skills.
One of the girls I was home schooled with was boy "crazy". She was at that age where she had just gotten a cell phone, loved texting and had a crush on every boy out there; any drama that was in her life revolved around a boy. She couldn't get enough of it either. I would always tell her that she was boy crazy and she would argue back that I was. Where she got that from, I don't know. You can even ask my mom if I have been boy Crazy. Melissa would even ask me every once in a while if there was a boy I was interested in. It was like pulling teeth to try to get a decent answer out of me. I always had guy friends but no boy friend. I never understood the point of boys at those ages; they were stupid and unattractive. Over the past couple weeks things have changed.
I have always worried about not being interested in boys, but the past couple weeks its been like the difference between day an night. I went from not being interested in boys to being boy crazy. I have one guy who I walk to the student union with every day after English. There are also two guys from my support group that I enjoy hanging out with and I have a ton of guys at work that are really cute. I went from worrying about whether I was ever going to be attracted to anyone and worried about someone accepting me to feeling very positive and really fast. That its self has been a huge change, but I am growing in so many other ways.
I have found a great new form of independence within the last week and a half. I now have transportation anywhere I want in my county without having to beg my parents to take me. There is a special service set up in our area for people with special needs and seniors where they do curb side pick-up and drop off. All I have to do is call a day in advance for a ride and if I need to cancel, I can cancel within 45 minutes of my ride time. I have 13 hour days without seeing my parents sometimes. am able to schedule my transportation with out my parents help even thought my mom doesn't think so and I am taking control of my social life. Yesterday I had to cancel a ride because I got called into work and my mother reminded me to do it by pestering me all day by calling me or texting me. I called an hour and a half before my ride was suppose to arrive. I got a voicemail from my mother telling me she made sure my ride was cancelled because she figured I wouldn't do it. Hahaha, she's so funny, I am a responsible adult now. I did it myself!!!
As far as my social life, I can't keep up. There have been times where I have gotten really upset because I never have friends to hang out with. Now school and work consumes my life and I still have a social life. It took me years to figure out that I had to plan stuff in advance and I needed to find people that I got along with, not just the cool people. I now have one friend that comes over to my house once a week to hang out with me and my family. If my parents are out for the night we order pizza and bring it back. Sometimes we go to a strip mall to look at craft supplies or little stuff like that, but we are really independent. Today I had to send my mother a facebook message to give her details of my thanksgiving week. I don't even know what my thanksgiving week holds yet. I do know that I work three days, i'm going out to breakfast with a friend tomorrow, I am going over to a friends house for dinner one night, I am going out to diner and a movie one night and god only knows what else. This is if no one blows me off. The fact is i'm planning stuff.
The other night our family was sitting at the dinner table together. I always get anxious around the holidays because we don't have a lot of family.I got that from my mom and now its annoying her because she has finally gotten over it. The holidays are always hard for everyone. I was sitting at the table with my family and my friend that comes over weekly was sitting there too. We were talking about up coming breaks and how work would play into our breaks and how are family would play into our breaks. I am very routine oriented so I was trying to figure out how we could squeeze her into our schedule over thanksgiving break while still fitting in her schedule too. We talked about it and she is going to be here all of thanksgiving break. She is having family come over, but will be pretty free other than work. We might actually go out to eat all together: her family and mine.
After talking about thanksgiving we continued to talk about the rest of the breaks for the year. We discussed christmas break and spring break. Fortunately she will be in town for both occasions. Honestly though, I can't believe all my good friends are from out of town now. When I was a child everyone left to see extended family. Now everyone leaves me to see immediate family. As the conversation proceeded I talked about going on vacation for spring beak. Spring break is always really tough because our school district doesn't have off, but our college does, so everyone leaves town anyway. Now that I am in college I would love to have a spring break. Its really hard to thought because my brother still has school and he's in high school, which means he has to go to school or he will miss a lot.
The other year, my parents had said something about me taking a weekend long vacation with a friend. I was hesitant about it for a while. The only person that I would go with was way older than me. It would be really weird, but now that I am growing more, it sounds pretty cool. My parents always said how so many kids go on vacations with there friends as teenagers, but my brother and I weren't going to be allowed; as we get older I think my parents figure stuff out and its okay. I think I'm ready to take the next step. I proposed that even though the rest of the family may not be able to go on vacation, Laura, my friend and I could go on a weekend trip or something.
When I proposed this idea my mother told me I was feeling my oats. I originally thought that feeling my oats meant showing off. The kind of showing off when you feel good. This time it meant that I was showing off in a way that I felt I was ready for more independence. I think I am and I think my parents are okay with it. I am turning into a typical young woman and it feels good. We discussed all options including my mother come with us and it could even just be a girls weekend. In general I am ready to go on a vacation with a best friend. Darn it!!!
This semester has been really good. I can't believe how much I have grown and what my future will hold. I have a feeling there are some exciting things come my way and possibly yours. We're only scratching the surface, but their are some pretty cool ideas my family has for me in the future. I personally want to write a book about my success with aspergers and for some reason my mother is under the impression that I am going to be famous because of some great reality television show. I thinks she's crazy. There are so many options out there, another of which is public speaking. I sjust feel like I am growning and more doors are opening for me each day. :)
Monday, November 12, 2012
Psychologists
Psychologists are absolutely pointless, that is in my opinion. I have seen them my whole life and only ONE has done me any good. I'm pretty sure I can't even county how many psychologists i've seen. Some of them I remember and some of them i don't. I have had at least three neuropsychological exams and another intake from psychologist, just to try and get a diagnosis. Don't even mind how they act. YET!!!
Within the first 24 hours of my life I had already stopped breathing four times. I was life flighted to a hospital that could give me better care after that. I spent the first week of my life in the NICU. where they performed various tests and sent me home with my brand new parents, on an apnea monitor.
Years later, I started having "episodes" that were later classified as seizures. When I had diagnostic testing done for the seizures, they noticed that my right hippocampus was abnormally small, whether that was due to a brain injury or a genetic glitch we may never know.What ever the case was it continued to give me problems up until this point.
When I was in preschool/kindergarten my teachers started noticing differences in my psychosocial development compared to my peers. I would often times play by myself, due puzzles and give too many hugs. I do remember liking puzzles, but I don't remember preferring to be by myself. My parents got concerned and I ended up seeing a psychologist in my area who will go by the name Dr. T.
I personally loved Dr. T. I don't really know what all he did for me, but I distinctly remember him having a HUGE bag of hospital doll stuff, which I now know as playmobil. He kept these doll toys which you could pretend were hurt or needed a wheelchair in his tiny walk-in closet. When he needed to talk to my parents he would put me in the closet to play with the playmobil, which I absolutely loved. Then one day when I went to see him, it was no longer there. I have no idea where it ever went, but I do know it disappeared.
Another time when I met with Dr. T, he put me in the closet to play again, so he could talk to my parents When he brought me back into his office, he had my parents leave the room. He then put a smiley face on the board and he put a frowny face on the board and asked me what they were. Now that I look back, I think he may have been looking to see if I had autism. I don't remember much more about him, but I do remember my parents didn't like him much. I think it may have been that he wasn't much help.
I went a while without seeing someone. Then in third grade, I went to see a guy downtown. I don't know what this guys name was, but at the time I was told that I was seeing him because I fought with my brother too much. Today I look at myself and think Really?? I am not sure how I could have been so gullible or understanding of something as simple as that. My parents would take me out of school to see this guy and we would talk. It was a really emotional time for me, because the only thing I remember him telling us at every appointment was that we needed to tape record how loud and awful I was during the fights so that i could actually hear and see what I was doing. It was really hard to hear such harsh criticism at that age. These sessions were always followed by a few minutes in a playroom with the doctor. I'm not sure why it was with just him. I also remember playing with a bobo doll, which I also find absolutely hilarious, since it was in a psychologist office. If you don''t know why, look up bandura.
A few more years went past and I was diagnosed with nonverbal learning disability which to this day, I still get questioned about it because I am so verbal. Yeah this condition doesn't mean that you aren't verbal. That diagnosis stuck for quite some time. It was pretty much a catch all label for doctors to use so I could get some support services at least through elementary school. it was also a term they used so they didn't have to say they didn't know. Then came middle school.
In middle school I was put in an itinerit support classroom where I received very little help and was starting to suffer. I was getting A's and B's and I wasn't meeting standards. We didn't really understand it, but now we know that the teachers were actually grading me differently than the rest of the students because I had a "disability". i finally ended up switching schools to a local charter school where I could get more help.
The local charter school that I went to, noticed that something was wrong and they thought I might have aspergers syndrome. They had a psychologist come in to talk to the guys and then to talk to the girls in a four-week session and I can't remember what it was about, but I do remember that instead of calling her Dr. Skinner they called her Darth Skinner because they didn't like her. The school ended up referring me to her.
I had never heard of aspergers before, but knew I was being tested for it. I looked it up and did a bunch of research on it and realized that it as a lot like me. When she tested me, she came to the conclusion that I didn't have it, but I had symptoms of it. The reason she didn't give me the diagnosis, was because I had a 'brain injury'. Today I know so many kids who have a brain injury and are diagnosed with autism. We went to see her for a while, but we didn't really like her that much so we stopped going. We really didn't see any point in it. I think she had good ideas, but just wasn't the right idea for us. She didn't get the family dynamic aspect.
We then waited a couple more years, until my family doctor finally told us that we needed to see a psychiatrist because they could give us talk therapy and if need be, medication. A psychiatrist finds something to give you medication for and doesn't give talk therapy at all. The psychiatrist I saw, was actually decent and I think he has helped me a lot with my anxiety. At my first appointment he mentioned to us a doctor by the name of Dr. Melissa Hunter, which is awesome. He told us that she did a lot of cognitive behavioral therapy, but didn't know if that would help because I had the brain injury. I had a med check up the next week and he mentioned her again except this time I met her.
After my appointment he, took us down the hall, knocked on her office door and we went in to meet with her. It wasn't an appointment, but we went in and said hi and talked for a couple minutes to see if she was an option. By the end, we had an official appointment set up to do an intake and start therapy. From the moment I stepped in her door, I know she was the right one. I remember her talking to us about my routines and schedules. I was thinking in my head about the fact that I don't have aspergers, so don't automatically assume stuff, but I did like that she understood what she was talking about and what she specialized in. I just had this feeling that if she didn't get me then, she would very soon after. I have never had that feeling with anyone else.
During my first intake appointment, I had to sign releases since I was a teenager, but my parents had to sign stuff too. We talked about confidentiality and we talked about my history. At that time, I had just had a huge melt down that included kicking a whole in a wall; a first for me. That evening, following the meltdown, I spent time with my friends at youth group. We had a small group discussion where I needed to take a break and take a walk. Something just wasn't right. I came back and from what I understand, I needed help. I ended up getting in my dads car and asking him what I was doing and where I was going. That was the first episode I had that we now call seizures. We had discussed these with Melissa at this appointment.
Somewhere in the middle of the appointment, I ended up having one of these attacks. I am not entirely sure why, but I did. I had walked out into the hallway, where I sat down because I was "hot". My horseback riding instructor sat across from me, because one of her children just so happened to have therapy at the same facility. I took some deep breaths, got up and went to a set of two doors while I was still in a daze. I looked at both doors as my teacher sat behind me, telling me which door to go into. I tried opening the door to no avail, when I decided to know and Melissa let me in. I sat there, with my head down, Melissa in front of me, and my parents on either side of me. I just kept saying I don't know whats wrong, but something is wrong. Later Melissa told me it was an anxiety attack. My father eventually took me outside for a walk and brought me back inside. We sat and talked about my history and goals as Melissa let me play on the computer to distract me. That was the beginning of my amazing journey with her.
Further into the year, we began adding new things to my therapeutic environment. I started using an emotions journal for when I was really upset. I would go to my learning support room or my bedroom, where I could just cry and let my emotions out without getting too upset. Along with using a journal, Melissa taught me how to deep breathe to calm myself down better, in situations where I couldn't use my previously learned strategies. Melissa ended up contacting my learning support teacher at that time, to let her know what we were working on and to help me transfer that to the classroom. I had a bucket in my learning support classroom, kind of like the cubbies you have in preschool. I would keep my journal in there. That was just the beginning of my experiences to come with Melissa.
I'm pretty sure I was the first patient of hers since she was new. Once she started gaining more clients, she started a social skill group. I was the only girl and I was the oldest child in the group. She let me know that this was the case, but I wanted to give it a chance. This was the first of two groups she held that I had taken part in. This was the first time I had actually started practicing less interrupting with a behavioral/social skills training approach. We learned that interrupting isn't good, but you can using it in emergencies. We got rewards throughout the weeks and we had a pizza party an wii playing day. At the very end, we were able to go to a park and play with each other, ending with awards and social skill bingo. I do have to say, I think I tested my limits there because Melissa had to put strict limits on where we were allowed to go; the playground, was my school's playground and I wasn't a flight risk.
In the second social skill group, it was mostly girls and we were all with in a particular age bracket, which helped tremendously. We worked on vital skills that pertained to our specific needs and our transition to adulthood. One of the most important skills I learned from this group was point of view. I learned about empathy and what it meant to be concerned for others and not so self-centered. I think this was the most crucial lesson I have ever learned. We continued working on interruption and I am still working on interrupting to this day.
I continued in therapy with Melissa up through some point in eleventh grade I think. Melissa was just thinking about starting up a teen group or a young adult group that would start the in november. I had seen her on a Wednesday and she told me that the group was cancelled because there were too many schedule conflicts. That friday, my mom and I were standing in the grocery store when my mother told me that I had a doc appointment with melissa on Saturday. I was a bit shocked; I asked her why. She told me she didn't know, but I knew something was going on. This never happened. I started coming up with solutions to the problem. My best conclusion was that melissa was moving, my worst fear. I asked my mom, where she continued to say she didn't know.
That saturday, when I arrived at the doctor's office, I didn't have to check in, which was odd. I came upstairs and walked into Melissa's personal office, with gloom on my face. She told me not to worry, but I knew it was the end. The whole appointment was purely to let me know that she was taking a new job that was an hour and a half away. She wanted this appointment to happen because she didn't know how I would handle it. We had a really unique professional relationship. We knew more about each other than most therapists and clients, but with in the appropriate boundaries. We talked about family vacations and company we had over. i had one more appointment after that before I had to let her go. After that, there was an agonizing six months before I could talk to her again.
When I talked to her again, she announced that she was pregnant. I was so happy for her because I always knew that she would be a good parent when the time was right. I always pictured her having kids and I was really surprised that she hadn't had a child before she had left the original facility. She was fresh out of school though. At this point we would talk occasionally and email.
Before, I had left Melissa as a therapist, she had set me up with Dr. P. She warned me that she was a bit dry, but that she would be able to help me. My mother would take me to these appointments, which were actually in the same facility that Dr.T worked. We met with her a few times and decided that she was cut out for us. She was very dry, there were awkward moments of silence and she thought my only problem was anger management. I'm not really sure where that came from. We eventually let Dr. P know that we would come back to her if we needed help.
After having minimal contact with Melissa, having no therapist and know that the baby would be arriving soon, my parents and I had made a mutual decision that it was best to go back to Melissa even though she was an hour away. I had serious fears about seeing another therapist to begin with, there was no way I was going to try another person, before i tried the drive to Melissa.
This past summer, Melissa decided to leave her job again. She gave me the opportunity to be acknowledged and say a few words at there annual charity ball. They had looked at this blog and I had read one of my posts. That was the end to DCI for me. Melissa has now moved on to a new position, but she sent me to yet a new therapist to complete her job with me.
Once again, I was in the same situation as so many times before. "How do you feel about that", the therapist would ask. "So what your saying...", the therapist would reply. This goes on a every session and I feel like I get no where. I dont' get the point of psychologists. We need more melissa's. We need people who know how to work with autism, not with emotions. We don't need to tell someone the answers to our problems, we come to them for help and to solve our problems. Do you see where this is going? All those other therapists out there are trying to solve there own problems. Melissa solved mine. Therapy will never be the same, but I have a great group of people supporting me in so many other ways. I have an aspergers support group, great bosses and great friends. heck with the doctors
Within the first 24 hours of my life I had already stopped breathing four times. I was life flighted to a hospital that could give me better care after that. I spent the first week of my life in the NICU. where they performed various tests and sent me home with my brand new parents, on an apnea monitor.
Years later, I started having "episodes" that were later classified as seizures. When I had diagnostic testing done for the seizures, they noticed that my right hippocampus was abnormally small, whether that was due to a brain injury or a genetic glitch we may never know.What ever the case was it continued to give me problems up until this point.
When I was in preschool/kindergarten my teachers started noticing differences in my psychosocial development compared to my peers. I would often times play by myself, due puzzles and give too many hugs. I do remember liking puzzles, but I don't remember preferring to be by myself. My parents got concerned and I ended up seeing a psychologist in my area who will go by the name Dr. T.
I personally loved Dr. T. I don't really know what all he did for me, but I distinctly remember him having a HUGE bag of hospital doll stuff, which I now know as playmobil. He kept these doll toys which you could pretend were hurt or needed a wheelchair in his tiny walk-in closet. When he needed to talk to my parents he would put me in the closet to play with the playmobil, which I absolutely loved. Then one day when I went to see him, it was no longer there. I have no idea where it ever went, but I do know it disappeared.
Another time when I met with Dr. T, he put me in the closet to play again, so he could talk to my parents When he brought me back into his office, he had my parents leave the room. He then put a smiley face on the board and he put a frowny face on the board and asked me what they were. Now that I look back, I think he may have been looking to see if I had autism. I don't remember much more about him, but I do remember my parents didn't like him much. I think it may have been that he wasn't much help.
I went a while without seeing someone. Then in third grade, I went to see a guy downtown. I don't know what this guys name was, but at the time I was told that I was seeing him because I fought with my brother too much. Today I look at myself and think Really?? I am not sure how I could have been so gullible or understanding of something as simple as that. My parents would take me out of school to see this guy and we would talk. It was a really emotional time for me, because the only thing I remember him telling us at every appointment was that we needed to tape record how loud and awful I was during the fights so that i could actually hear and see what I was doing. It was really hard to hear such harsh criticism at that age. These sessions were always followed by a few minutes in a playroom with the doctor. I'm not sure why it was with just him. I also remember playing with a bobo doll, which I also find absolutely hilarious, since it was in a psychologist office. If you don''t know why, look up bandura.
A few more years went past and I was diagnosed with nonverbal learning disability which to this day, I still get questioned about it because I am so verbal. Yeah this condition doesn't mean that you aren't verbal. That diagnosis stuck for quite some time. It was pretty much a catch all label for doctors to use so I could get some support services at least through elementary school. it was also a term they used so they didn't have to say they didn't know. Then came middle school.
In middle school I was put in an itinerit support classroom where I received very little help and was starting to suffer. I was getting A's and B's and I wasn't meeting standards. We didn't really understand it, but now we know that the teachers were actually grading me differently than the rest of the students because I had a "disability". i finally ended up switching schools to a local charter school where I could get more help.
The local charter school that I went to, noticed that something was wrong and they thought I might have aspergers syndrome. They had a psychologist come in to talk to the guys and then to talk to the girls in a four-week session and I can't remember what it was about, but I do remember that instead of calling her Dr. Skinner they called her Darth Skinner because they didn't like her. The school ended up referring me to her.
I had never heard of aspergers before, but knew I was being tested for it. I looked it up and did a bunch of research on it and realized that it as a lot like me. When she tested me, she came to the conclusion that I didn't have it, but I had symptoms of it. The reason she didn't give me the diagnosis, was because I had a 'brain injury'. Today I know so many kids who have a brain injury and are diagnosed with autism. We went to see her for a while, but we didn't really like her that much so we stopped going. We really didn't see any point in it. I think she had good ideas, but just wasn't the right idea for us. She didn't get the family dynamic aspect.
We then waited a couple more years, until my family doctor finally told us that we needed to see a psychiatrist because they could give us talk therapy and if need be, medication. A psychiatrist finds something to give you medication for and doesn't give talk therapy at all. The psychiatrist I saw, was actually decent and I think he has helped me a lot with my anxiety. At my first appointment he mentioned to us a doctor by the name of Dr. Melissa Hunter, which is awesome. He told us that she did a lot of cognitive behavioral therapy, but didn't know if that would help because I had the brain injury. I had a med check up the next week and he mentioned her again except this time I met her.
After my appointment he, took us down the hall, knocked on her office door and we went in to meet with her. It wasn't an appointment, but we went in and said hi and talked for a couple minutes to see if she was an option. By the end, we had an official appointment set up to do an intake and start therapy. From the moment I stepped in her door, I know she was the right one. I remember her talking to us about my routines and schedules. I was thinking in my head about the fact that I don't have aspergers, so don't automatically assume stuff, but I did like that she understood what she was talking about and what she specialized in. I just had this feeling that if she didn't get me then, she would very soon after. I have never had that feeling with anyone else.
During my first intake appointment, I had to sign releases since I was a teenager, but my parents had to sign stuff too. We talked about confidentiality and we talked about my history. At that time, I had just had a huge melt down that included kicking a whole in a wall; a first for me. That evening, following the meltdown, I spent time with my friends at youth group. We had a small group discussion where I needed to take a break and take a walk. Something just wasn't right. I came back and from what I understand, I needed help. I ended up getting in my dads car and asking him what I was doing and where I was going. That was the first episode I had that we now call seizures. We had discussed these with Melissa at this appointment.
Somewhere in the middle of the appointment, I ended up having one of these attacks. I am not entirely sure why, but I did. I had walked out into the hallway, where I sat down because I was "hot". My horseback riding instructor sat across from me, because one of her children just so happened to have therapy at the same facility. I took some deep breaths, got up and went to a set of two doors while I was still in a daze. I looked at both doors as my teacher sat behind me, telling me which door to go into. I tried opening the door to no avail, when I decided to know and Melissa let me in. I sat there, with my head down, Melissa in front of me, and my parents on either side of me. I just kept saying I don't know whats wrong, but something is wrong. Later Melissa told me it was an anxiety attack. My father eventually took me outside for a walk and brought me back inside. We sat and talked about my history and goals as Melissa let me play on the computer to distract me. That was the beginning of my amazing journey with her.
Further into the year, we began adding new things to my therapeutic environment. I started using an emotions journal for when I was really upset. I would go to my learning support room or my bedroom, where I could just cry and let my emotions out without getting too upset. Along with using a journal, Melissa taught me how to deep breathe to calm myself down better, in situations where I couldn't use my previously learned strategies. Melissa ended up contacting my learning support teacher at that time, to let her know what we were working on and to help me transfer that to the classroom. I had a bucket in my learning support classroom, kind of like the cubbies you have in preschool. I would keep my journal in there. That was just the beginning of my experiences to come with Melissa.
I'm pretty sure I was the first patient of hers since she was new. Once she started gaining more clients, she started a social skill group. I was the only girl and I was the oldest child in the group. She let me know that this was the case, but I wanted to give it a chance. This was the first of two groups she held that I had taken part in. This was the first time I had actually started practicing less interrupting with a behavioral/social skills training approach. We learned that interrupting isn't good, but you can using it in emergencies. We got rewards throughout the weeks and we had a pizza party an wii playing day. At the very end, we were able to go to a park and play with each other, ending with awards and social skill bingo. I do have to say, I think I tested my limits there because Melissa had to put strict limits on where we were allowed to go; the playground, was my school's playground and I wasn't a flight risk.
In the second social skill group, it was mostly girls and we were all with in a particular age bracket, which helped tremendously. We worked on vital skills that pertained to our specific needs and our transition to adulthood. One of the most important skills I learned from this group was point of view. I learned about empathy and what it meant to be concerned for others and not so self-centered. I think this was the most crucial lesson I have ever learned. We continued working on interruption and I am still working on interrupting to this day.
I continued in therapy with Melissa up through some point in eleventh grade I think. Melissa was just thinking about starting up a teen group or a young adult group that would start the in november. I had seen her on a Wednesday and she told me that the group was cancelled because there were too many schedule conflicts. That friday, my mom and I were standing in the grocery store when my mother told me that I had a doc appointment with melissa on Saturday. I was a bit shocked; I asked her why. She told me she didn't know, but I knew something was going on. This never happened. I started coming up with solutions to the problem. My best conclusion was that melissa was moving, my worst fear. I asked my mom, where she continued to say she didn't know.
That saturday, when I arrived at the doctor's office, I didn't have to check in, which was odd. I came upstairs and walked into Melissa's personal office, with gloom on my face. She told me not to worry, but I knew it was the end. The whole appointment was purely to let me know that she was taking a new job that was an hour and a half away. She wanted this appointment to happen because she didn't know how I would handle it. We had a really unique professional relationship. We knew more about each other than most therapists and clients, but with in the appropriate boundaries. We talked about family vacations and company we had over. i had one more appointment after that before I had to let her go. After that, there was an agonizing six months before I could talk to her again.
When I talked to her again, she announced that she was pregnant. I was so happy for her because I always knew that she would be a good parent when the time was right. I always pictured her having kids and I was really surprised that she hadn't had a child before she had left the original facility. She was fresh out of school though. At this point we would talk occasionally and email.
Before, I had left Melissa as a therapist, she had set me up with Dr. P. She warned me that she was a bit dry, but that she would be able to help me. My mother would take me to these appointments, which were actually in the same facility that Dr.T worked. We met with her a few times and decided that she was cut out for us. She was very dry, there were awkward moments of silence and she thought my only problem was anger management. I'm not really sure where that came from. We eventually let Dr. P know that we would come back to her if we needed help.
After having minimal contact with Melissa, having no therapist and know that the baby would be arriving soon, my parents and I had made a mutual decision that it was best to go back to Melissa even though she was an hour away. I had serious fears about seeing another therapist to begin with, there was no way I was going to try another person, before i tried the drive to Melissa.
This past summer, Melissa decided to leave her job again. She gave me the opportunity to be acknowledged and say a few words at there annual charity ball. They had looked at this blog and I had read one of my posts. That was the end to DCI for me. Melissa has now moved on to a new position, but she sent me to yet a new therapist to complete her job with me.
Once again, I was in the same situation as so many times before. "How do you feel about that", the therapist would ask. "So what your saying...", the therapist would reply. This goes on a every session and I feel like I get no where. I dont' get the point of psychologists. We need more melissa's. We need people who know how to work with autism, not with emotions. We don't need to tell someone the answers to our problems, we come to them for help and to solve our problems. Do you see where this is going? All those other therapists out there are trying to solve there own problems. Melissa solved mine. Therapy will never be the same, but I have a great group of people supporting me in so many other ways. I have an aspergers support group, great bosses and great friends. heck with the doctors
Sunday, November 4, 2012
No Goodbye, Farewell, until we meet again!!!
Every spring during my grade school years, I would start to get tired of school and get ready for summer. Im always ready to get out of the hot old buildings that our district refused to put air conditioners in and enjoy the sun. Then in the fall, it was nice to start back up again. It felt refreshing to pick out new classes, reunite with old friends, and reassure yourself that this is going to be the semester that you work hard in. Then as time goes on, you get settled in your classes; its just how life goes. Sometimes that is not the case though. Sometimes that doesn't always work though.
Yesterday, which was a Saturday, I went to check my school email and was shocked to see what I had. There was a new email that read, new teacher on Monday. I opened the email up and this is what it said.
Dear Class,
For personal reasons I will not be teaching our ENGL 15 class any further this semester. Despite this, I want everyone in the class to know I enjoyed our time together, and I hope all of you can keep applying what you've learned in class for the rest of your college careers.
Beginning Monday, I am turning over teaching duties to blank, who is an excellent rhetoric teacher; I'm sure you all will learn a lot from her. She would like the class to read the "School Lunch" memoir on pages 108-112. She also has some extra material she would like everyone to look at before class on Monday:
A video about storytelling:
http://www.youtube.com/watch?v=KxDwieKpawg&noredirect=1
Two short memoirs, that have very different approaches to dialogue:
http://www.theparisreview.org/blog/2012/11/02/falling-overboard/
http://www.newyorker.com/archive/2003/12/22/031222fa_fact3
http://www.youtube.com/watch?v=KxDwieKpawg&noredirect=1
Two short memoirs, that have very different approaches to dialogue:
http://www.theparisreview.org/blog/2012/11/02/falling-overboard/
http://www.newyorker.com/archive/2003/12/22/031222fa_fact3
I know everyone in the class will go on to have fruitful careers at Penn State.
Regards,
Blank
It may not seem that big a deal to some people, but this situation is very complex. Its not as if you teacher had been pregnant all semester and had a baby. Its also not as if we are in elementary school and lastly its not the beginning of the semester, but right in the center when everyone has finally gotten used to everything.
There are also some more complexities for me since I have various disabilities and physical limitations. I'm not saying that these are a problem or that I am using them as a crutch, but they may make things more interesting. First off I get disability services through my university which means that in the beginning of the year I have to give them accommodation letters. This class starts tomorrow, do I need new letters to give to the teacher or will they have handed over the letters to? Does this mean I have to set an appointment up with the ODS or not? It also means that I have to tell one more person the wonderful news that I have a seizure disorder and that I have a medical bracelet, which they don't always take very well. Its also really tiring to have the bad reactions over and over again and I just wish that I had someone that knew me and felt comfortable with my circumstances and trusts me that my seizures aren't bad. This would only happen if they had known me for a while and really knew what to expect and that its not that big a deal.
Now add that this is a class that has reading intensive parts that we read in class and I have visual issues that make my eyes tired really easily. If I don't have my disability information with them on monday, I may have to struggle a bit until we can work out personal accommodations that may be available per teachers discretion since there aren't many accommodations for in class. I need in class accommodations sometimes, but if you go to your disability specialist, the only accommodation that you get is extended time on in class projects, which in the end doesn't help at all because that means that you just get to complete a project on your own time. That doesn't mean that with a reading assignment you can just read it on your own time. There are in class discussion about in class reading and there are peer reviews of 5 page papers for two people in a 50 minute period while answering questions about said papers.
Another issue is that I have aspergers. We have a class of 25 students, which means that have to tell yet another teacher about my aspergers where they may not understand it. Why I have to tell them, you ask? I have to tell them, because sometimes I answer quetions/raise my hands too much and I can discuss what I can work on in class if I am having social trouble. They are able to accommodate me more than you may know by giving me visual cues. Now also take into consideration that I don't do well with change. Normally change is a lot harder for me, but if I cried just a couple years ago about a piano less being cancelled just one time and now I am dealing with my whole class being turned upside down, i'm doing pretty well. I just don't know what all it means.
I know this is a lot of whining, but its a lot of stuff to think about within a 48 hour period. I have to be ready to make changes asap. It may be a good thing in the end, but I really don't know what to think. I didn't really connect with the teacher before anyway, but still. I'm dealing with change really well and its not bad, I actually find it very interesting, its just putting all the pieces together in such a complex situation that is hard for the typical students to adjust to or take in.
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